All About Me & My Surroundings!

General Secretary PDF PPP – Shakir Alam


Few days ago on Benazir Bhutto’s birthday according to the frontier post PPP leaders, workers donated 28,300 blood bags. From that bags 4500 bags were given to different thalassemia centers in Karachi and a MEGA TRANSFUSION EVENT was organized at Expo Center Karachi on 26th June.

Being a thalassemia major and an activist I didn’t like the idea of it and I had some reservations, despite of it being open event I choose not to attend. We patients know what is right, what is wrong, I know getting transfusion on a place where you can’t provide immediate treatment if God forbid anything wrong happens is the MOST idiotic mistake I will make ever in my life.

Transfusion is not a piece of cake, if God forbid patient get reactions or any infection he/she has to be rushed to the emergency at any cost, it is life and death matter and to be frank government risked 4500 patient’s lives with that.

I will blame PPP government + thalassemia centers who agreed for the event and took risk of 4500 lives.

General Secretary PDF PPP Shakir Alam shared about the success of the event, pictures of the event and I couldn’t resist I simply asked him few questions and he couldn’t control his anger and used foul language in his comments, I asked him to behave, but he didn’t listen to me and continuously kept on misbehaving, when I told him my parents have been supporters of PPP for 40 years he started dragging my parents.. He has been deleting the comments I made and continuously kept on harassing me.

A lot of my thalassemia fellows saw the conversation and asked him to behave but he didn’t listen to them too. After 3 hours of commenting I stopped replying and today I found him again commenting about me, when I asked him to stop it.. he said he would have replied if I wasn’t female.. lol.. whaat? you first misbehaved for 3 hours and now you coming up with the most stupid line.. he said sorry to me in INBOX, I simply asked him to say sorry on the status where he was harassing me.. but now what? he has blocked me from the profile =)

I saw the pictures of the event, they used tables as bed for patients and ropes to hang blood, the picture itself has been giving me SHIVER!!! I wonder what they think of us? animals.. available for qurbani??

Please do check the pictures, all his pictures, comments etc. You can also read his status here :

Being a government official he must be polite, he must know how to behave and how to give respect, if I am not misbehaving then I demand you to behave too.. Disgusting PPP party and their workers. Shame on you guys.


Iron Chelation



I have been writing for thalassemia patients, their needs, treatment, sponsorship, donation and Alhamdulillah with amazing friends/donors I have been able to do A LOT for thalassemia in past 3 years.

It is indeed great when on a single status/tweet/email SO many donors come forward and help our thalassemia fellows. Alhamdulillah currently we are sponsoring more than 10 thalassemia patients with the help of our generous donors, I really can’t thank enough my donors & Allah for the trust and support.

Am sure a lot of you now know about thalassemia and its treatment, along with regular blood transfusion patient needs to get iron chelation to get rid of excess iron they get from blood transfusion, if they don’t get iron chelation they won’t be able to live healthy life and due to that we have lost many thalassemia fellows till now.

For iron chelation there are 2 treatments, first is injection desferal and second is tablets ferriprox/asunra/exjade etc. I have got to know Civil Patient Welfare is providing Asunra/Exjade for free of cost to the patients who can’t afford. And that is mashaAllah definitely a good cause they are doing with the help of city government but sadly they are not providing injection desferal which is LOT more cheaper than Asunra/Exjade.

A lot of patients have approached me to get them desferal injection because Asunra/Exjade/Ferriprox has LOTS of side effects and not suitable for many patients while desferal injection is suitable for everyone and doesn’t have side effects like other drugs.

I wasn’t taking any request for injection desferal since a patient who is on desferal needs at least 80 vials per month which costs around 10400/- PKR. And there are many patients who have approached me till now, I have turned them down. But I guess I can’t turn them down anymore.

Injection Desferal costs around 130/- per vial, if you can donate for the cause please let us know, you don’t need to sponsor any kid for whole month, but at least few hundreds per month wouldn’t be much of burden. If you want to donate directly to the thalassemia centers, let me know I will provide you details & if you send me donation I will buy the desferals and hand over to needy patients OR I will donate it on your behalf in thalassemia centers.

Please remember iron chelation is as important as safe blood transfusion for thalassemia patients, if a patient won’t get iron chelation they will not be able to survive… if any of you want more information about iron chelation or thalassemia please let me know, I would LOVE to give details.


Blood Donation

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Visited Fatimid Foundation after so long on 30th January… Depressed to see all the condition there… how can people be so arrogant with patients..?

So much of blood shortage… Patients with 2-3 gram hemoglobin have to wait a week for their blood transfusion… Highly disappointed…

My mom & dad has been organizing blood camp for thalassemia children when me, Salman and Noman bhai were so young, they knew the pain of a thalassemia child, they knew how it feels when a child have to be dependent on other’s blood for their live.

After mom & dad and after losing Noman bhai we decided to organize blood camps on our own, we started to take care of camps etc but we were really taken back when people didn’t take interest, we literally had to beg people for blood donations.

After Salman I used to take 5-10 friends of mine to thalassemia centers and they used to donate every 4th month happily, they still do. I stopped organizing blood camps because of people behavior; I couldn’t beg them for blood donation…

But today here I am again, to beg for those thalassemia patients who can’t afford treatment at Aga Khan, who can’t arrange donor every time they need transfusion and who can’t pay screening cost…

If you are a student and you can organize a blood camp in your college or university, let me know.

If you are in a political party and you can organize a blood camp in your area, let me know.

If you are running a factory/company and you can organize a blood camp there please let me know.

You don’t have to pay for anything, all you have to give space to a thalassemia center & donors, if you can convince your fellows, friends, relatives, employees, workers please do so…

Your blood help save thalassemia child’s life! They look at others with a hope to continue their lives. A single bag of blood help saves 3 lives!

And it is in the Quran “And whoever saves one – it is as if he had saved mankind entirely.”


Trip to Interior Sindh

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Since it was winter vacation we decided to explore Sindh :)

Journey started from Karachi, we reached Hyderabad at 9PM, checked-in Hotel Venus at Thandi Sarak, went out for dinner at Shalimar Broast, got back in hotel and slept. Warm and cozy hotel it is.. Shalimar Broast is good for pait-pooja, tried Chicken Shashlik, Chicken Karhai & Zinger Burger.

Day 2 started with breakfast at a dhabba with chai, paratha & omelet. Headed to Qadamgha Moula Ali (A.S) then to Sindh Museum but sadly it was 27th December and the city was closed… had no choice but to leave for some other place. We decided to go for Thatta.

Reached Thatta at 2:30PM, headed out for Shah Jahan Masjid, Mazar Shareef Hazrat Syedna Abdullah Shah Jeelani Ashabi (R.A) and then to Makli Hills. Decided to travel back to Hyderabad without wasting any time… stopped at Jamshoro for refreshment. And we started our journey for Dadu.

For a night stayed at Bhittai Hotel situated on By Pass Larkana Road Dadu. It was inaugurated just 4 days ago. AMAZING service, awesome rooms, reasonable rent. Highly recommended.

Left for Larkana, reached Ghari Khuda Bakhsh. Can’t deny the fact of it being beautiful!, parked the car, went inside and was informed that we can’t visit the mazar for 30 minutes since there’s some VVIP coming for Fatiha..

For next 30 minutes we wandered around, found a bazaar, talked to few shopkeepers. Was informed that among Benazir’s children only Aseefa visit mazaar mostly, Bakhtawar & Bilalwal visit once in an year. Through none of our concern who visits and who doesn’t but as shopkeeper was sharing it we listened to him. They have a municipal corporation working there BUT the amount of trash we saw there was unbearable.

We were informed after 30 minutes that we can visit the mazaar now since VVIP has left. Crossing the security we entered in mazaar.

It was indeed depressing to see the 95% crowd there was just for pictures, wandering around, giggles, laughter, etc. It was disgusting to see people standing in front of tombs and making selfies.

Later on we traveled back to Larkana, stayed for a night and then headed towards Moen Jo Daro in the morning. Had GREAT time learning about the history of Moen Jo Daro, saw the collectibles of Moen Jo Daro at the museum and spent some time in Moen Jo Daro Guest House.

Started traveling for Sehwan Shareef, visited Gar e Qalandar (R.A), it was really peaceful atmosphere at the Gar. Visited Takht e Qalandar, Indus River and then we went to the mazaar.

Was supposed to stay at mazaar for Fateha for some time but we found out that Shia community is there for some matam… in 26 years of my life I saw this for the first time and sorry, no offence but I was feeling so uncomfortable that we all decided to leave the mazaar as soon as possible.

And we started our journey back to Karachi.

Few things I would like to mention, the CHILLY & FOGGY nights & mornings of interior Sindh IS TO DIE FOR!, the roads are awesomely built, greenery you see while travelling is BEAUTIFUL!, the history behind our Buzurg Gawara E Deen, Moen Jo Daro and historical places is remarkable.

I believe I have just managed to cover 25% of Interior Sindh, there’s so much to see, visit and discover in Sindh. We really underestimate the beauty of Sindh.

It was really a memorable trip of my life Alhamdulillah. Couldn’t agree more to the phrase “Jagah jii lagane ki duniya nahi hay / Yeh ibraat ki jaa hay.. tamasha nahi hay” after visiting Bhutto’s & Hazrat Lal ShahBaz Qalanda R.A mazaar.

Note: We have tried to capture pictures of all the places, please check album for names & images of the places.

Album :


2014 : Happy New Year :)

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2013 has been a roller coaster ride for our family, it started with winning of some gifts, that was definitely good start of a year. But by the April it started turning bad.., mom being hospitalized and then leaving us all alone in July. Then being invited as a guest at Aman Ramazan, being a guest speaker among personality like Ansar Burney, SK Collection turning 2 and growing to more than 150K fans, started managing another online business, made so many new friends, strengthen few old relations, turned stronger, braver and ruder :)

All the happiness at one side but I miss mom a lot… that was the BIGGEST loss of ours in 2013.

I hope and pray 2014 brings lots happiness to my choti si family, lots of success and may Allah fulfill all our wishes *amen*. Praying same for all of you :)

Happy New Year everyone!