Power of social media & Free HLA Typing Test

This is the power of social media & patient support!!

This father contacted me yesterday and told me that they need to get HLA typing test done, they are in Islamabad and the test will cost 1 lac in Shifa hospital. Is there anything I can do? Or can I refer to any hospital where it is less costly.

I knew Faiza Ijaz is involved in Bone Marrow Transplant center in Islamabad and she would be the perfect person to guide. With Faiza permission I sent her number to him.

And this is what I received in my inbox 

HLA typing class I and II high resolution cost around 1 lac in private hospital. You can get done in free or subsidized cost in Dr Akbar Niazi Teaching Hospital, this is such a big relief and very rarely people know about it.

Thank you so much Faiza!!

Salman Mehmood aka skdev on Kaun Hoga Naujawanon Ka Wazeer e Azam

24 year old boy from Karachi Pakistan, Salman, was a thalassemia major patient just like any other patient who suffer from same disease.

The only thing which separate him is his cause. His objective was to create awareness of thalassemia in general public. He designed and programmed website which give complete information on thalassemia (www.thalassemia.com.pk), apart from this he also organized blood camps.

He had an aim to work on thalassemia awareness, to support fellow thalassemics, he had a dream of Thalassemia Free Pakistan.

He was dearest among his friends and relatives. On 19th October 2009 he passed away due to Meningitis. Although he is no longer among us, but his cause is now lead by his sister Ayesha Mehmoood (who is also thalassemia major) and his cause will keep him alive.

our website : http://www.thalassemia.com.pk
our page : https://www.facebook.com/FightAgainstThalassemia
our group : https://www.facebook.com/groups/Fight.Against.Thalassemia/


Salman :’) the one and only who pushed me to work for thalassemia cause.., his memories, efforts made me work for the cause day & night.. I can never claim that this cause has another founder.. I don’t even like to mention co-founder (need to in papers) because he was the only one who started this cause and this cause belongs to him and our #thalassemia fellows from all over Pakistan..

We all need to work for his dream of Thalassemia Free Pakistan.

Ayen mil ker banayen Thalassemia se mehfooz Pakistan..

Thalassemia Patients & Parents Society

Fight Against Thalassemia Patients & Parents Society

We are starting this society with two basic aims; one of them would be to struggle for better treatment and second would be thalassemia awareness.

All over Pakistan we don’t have a proper patient & parent society to voice our concerns & needs. It is need of the hour to have one society for our patients and parents.

With the help of this society we will able to document the problems we face, the needs we have, and the betterment of treatment we deserve.

With the help of this society we will be in better position to put forward our demands, needs and concerns. We will be in better position to reach out to higher official authorities & get solutions of our problems.

Only patients & parents will be the members of this society since only they know the true suffering and they are the beneficiary of thalassemia society.

“Each one of us can make a difference. Together we make change.” – Barbara Mikulski

If you wish to be a part of Thalassemia Patient & Parent Society, please fill the form below.

https://t.co/koI4LSi1Pv