Thalassemia awareness..

Aik andaze ke mutabiq har saal Pakistan mein 6000 #thalassemia major bache paida hote hain.. which means 16 per din.. roz new cases..

Thalassemia Centres ki itni awareness campaigns ke bawujood roz new case samne atey hain.. kaheen cousin marriage, kaheen dour dour tak koi rishta nahi..

Hum kyun nahi samjhte thalassemia minor koi bhi hosakta hay, hum kyun nahi samjhte hamari aik la-parwai hamari naasl’on pe bhari par sakti hay.. hum kyun family mein koi case diagnose hone ka wait karte hain? konsi rocket science hay jo hume samjh nahi arahi? Aur sawal yeh hay ke kaise aye gee? Kia karna chahiye aisa?

Afsoos tu parhi likhi awam pe hota hay, jo aik test na karwane ki wajah se apne new born ko kabhi kisi doctor, kabhi kisi hospital liye liye phirte hain.. gaao’n dehaat mein awareness na hona samjh ata hay per Karachi, Lahore, Islamabad jaise cities mein parhi likhi awam ko insan kia kahen?

Family mein thalassemia diagnose hone ka intezar na karen, sehat aik naimat hay qadar karen.. aik test kerwa ke apni aulaad ko #thalassemia se mehfooz karen..

Standard treatment..

Standard treatment guideline ke mutabiq #Thalassemia major ki hemoglobin 10 grams aur Ferritin under 1000 per maintain karne se un ki growth mutasir nahi hoti, normal lougon ki tarah woh jee sakte hain, kaam kar sakte hain, shadi ker sakte hain, bache paida kar sakte hain.. but..

Hamare Pakistan mein.. mein ne boht hi kam aise apne fellows dekhe hain jo apni hemoglobin 10 per maintain kar pate hain.. jin ka ferritin 1000 ke under ho.. 99% hamare thalassemia centers un ki hemoglobin 10 pe maintain hi nahi kar patey.. na hi ferritin kam karne mein un ki khaas madad kar patey hain..

Nateeja? deform howi bones, abnormal growth, hormonal issues, enlarged liver, enlarged spleen, in the end iron overload heart per and you are gone..

Pata nahi kab yeh issues end ho paye gen..

I wish I wasn’t..

I wish I wasn’t thalassemia major and could donate blood for others, whenever there’s a need of blood donor or whenever we arranged a blood camp I always secretly wished that I could have donated blood if I wasn’t thal major.. I always want to donate blood and know how it feels to help save a life.

But I know there are many people who donate blood whenever there’s a need and because of them we #thalassemia major survive.. big thanks to each of you.

Since Facebook has introduced this new feature I feel it will be now more helpful for me and for thalassemia fellows to search for blood donors in our cities.

If you are a blood donor or if you are someone who can donate blood but never did before please do visit this link and become a blood donor so that whenever there’s a need, you would be able to help someone like me  ==> www.facebook.com/donateblood

For all the thalassemia fellows, whenever there is a need for blood simply visit this link, create a post describing which blood group you need, when and where.. all the blood donors of same blood group will be notified ==> https://m.facebook.com/findblooddonors

Again a BIG THANKS to all the wonderful blood donors & Facebook for introducing this feature 💕💕💕

Iron Chelation Program..

 

You can even donate 500, you can donate anonymously, I know this is my personal account and my organization isn’t registered but me and my family is helping #thalassemia community since more than a decade Alhamdulillah. You can always ask me for proofs, receipts, you can ask any question..

If can’t donate then please share the post. Help save lives. JazakaAllah khair

Help us bring betterment in their lives..