Thalassemia ? Marriage ? Children ?

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Okay after my last post… many friends asked me about *ahem ahem*, they were like you are hiding something and stuff, and few friends asked about Thalassemia Major and their marriages…, so I thought to write a post about it… here it is:

About Ahem Ahem: there is no one, yeah… am single but just like any other mother my mother is concerned about my marriage and blah blah… so one thing cleared… now moving to Thalassemia Major and their marriages

There was a time when it was said a Thalassemic can’t live till 18 years old, but it has been proved wrong : ) and am glad me and Salman are the examples of this thing, me being 20 years old and Salman being 22 years old MashaAllah.

Many friends ask me about Thalassemia and life with Thalassemia, and I keep telling them Thalassemic life is like any other human being’s life, nothing different… they live, they eat, they drink, they walk, they sleep, they are human being! Just they have to be careful about their treatment, that’s it….

If you maintain your health you can live up to 40 / 50 years…

One day a friend asked me, are you not scared of death? You are ill you must be scared na?, I didn’t want to be harsh but I said ‘do you know when you going to die? Do you know the time and day your life gonna end?’ when a normal doesn’t know about his/her life then what is the difference between us and them? Nothing : ) yeaah nothing! Even an illiterate would understand this…

Marriage is like bit of issue whether its for a Thalassemic or a normal person, but marriage for Thalassemic is possible, they can marry any normal person (blood test is required before marrying), live a normal life and even can have babies! Whats the difference remained now? Once again nothing!

Thalassemic just have to take proper care, proper treatment and awareness about the disease, then they can easily beat any other normal person : )

Am quoting some related information about Thalassemia Marriage and Children from Thalassemia.Com.Pk

Do thalassemics necessarily have thalassemic children?
No. Usually their children will be healthy, but it does depend on who they marry.
Figure 8 shows that if a thalassemic marries a “normal”, all the children will be healthy carriers. They must inherit a thalassemia gene from their thalassemia parent, and they must inherit a normal one from the normal parent, so none of them can possibly have thalassemia major.

Figure 9 shows that if a thalassemic marries a thalassemic carrier, in each pregnancy there is a 50 % chance that the child will be thalassemic, and a 50 % chance that it will be a healthy carrier. This is quite a common situation, since thalassemia carriers sometimes have a special understanding for people with thalassemia major. Then they have to choose whether to use parental diagnosis or not.

Figure 10 shows that is one thalassemic marries another, all their children will be thalassemics. This situation arises sometimes too, because thalassemics have so much in common, they often feel particularly close to each other. When it does happen, they usually decide not to have any children. but in the future, if it becomes possible to correct thalassemia by genetic engineering, it could become possible even for such couples to have their own, healthy children.

It depend on us how we take things, how we look at things, the famous line: glass is half empty or half full : )? All we have to become positive and optimistic then we can achieve anything… that’s what I have learnt so far…, your views change positive into negative, negative into positive, its you who can make a difference in you and in the world… so when you starting to make a difference in yourself?

Your question/query is welcome… I would love to answer any question you want to ask about Thalassemia or about my life : )

Who is sending proposal after reading all the information ;)? Lol kidding!

Take cares, Allah Hafiz
-ayesha

Maan (Mother)

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Yeah I know am late for Mother’s Day… but who is celebrating mother’s day? Am not… why celebrate it once a year? I like to celebrate every day ;d, I have gathered some things to discuss about mothers.. Am sure you guys going to love it!

Month ago me and Salman went to Aga Khan, while meeting doctor there was a mother of 6/7 years old boy who was discussing that she is not using any iron chelators for her kid.. because she thinks it hurts…, doctor was telling her that if she didn’t start it now then God forbid it would hurt you more in the future… * Allah na kare *

While listening to this I asked doctor about the Oral Iron Chelator which was getting launched in Pakistan, He pointed at 2 guys standing at the door and said “They are from the company * Novartis * of Oral Iron Chelator” and he invited them inside, both of them were doctors, they wanted to show us some presentation about that medicine, just in 5 minutes doctor room turned into presentation room ;d, patient’s parents filled the room within 5 minutes, while showing presentation they answered our questions too… and I want to quote few lines from our discussion here:

He = Doctors
He: If you use iron chelating drugs regularly then you get a good life span, a healthy life… and you just be like regular people… here is an example * pointing at me *, she is 20 and her life span looks good because of the care she is taking…

Someone from the crowd * I couldn’t see who asked this question *: Single?

For a moment crowd burst into laughter ;d

Me: * giggles *, 20 female single, studying + working

Whole room * MashaAllah MashaAllah MashaAllah *

He: and you can get married too InshaAllah

Room: InshaAllah!

He: So this is the difference between a person taking iron chelators and a person who ignoring iron chelators.

That someone who asked about me being Single was a mother too… wakai… mothers are sooooooooooooooooo cute!!! And conscious about her kids… and if a mother have a kid like me or Salman they have to be extra conscious… ;d

Another thing I noticed:
Whenever am sad, down, low or quiet my mom can easily get what is wrong with me without asking me… sometimes I try to hide but she gets me so easily :$ I love you mom!

Whenever I want someone I don’t need to tell mom… she knows it already…

Whenever I feel like talking to a friend, I have always found my mom by my side..!

May Allah give my mom a healthy happy life!, these days she is not feeling well.., kindly pray for her! And plus she is curious about my * ahem ahem, I hope you got it hehe, do I need to tell you guys? No* so please please please remember my mom in your prayers * thanks*

May Allah give all your mothers and fathers a long healthy happy life! And lots n lots of happiness, Allah hum sab per apne waldain ka saya salamat rakhen hamesha Ameen!

TaGggy!

tagged

Thanks Dheet Daddo for tagging :)ِ

1. Last movie you saw in a theatre?

Its been ages since I saw a movie in a theatre..

2. What book are you reading?

Course books, exams coming ;p

3. Favorite board game?

Ludo, Monopoly…!

4. Favorite magazine?

None

5. Favorite smells?

Sand’s after rain :)!

6. Favorite sounds?

None

7. Worst feeling in the world?

None

8. What is the first thing you think of when you wake up?

Works I need to complete ;p

9. Favorite fast food place?

None, I would like to have Biryani from Cafe Student every day, I don’t mind :p

10. Future child’s name?

Future? I don’t think about future before time!

11. Finish this statement. “If I had lot of money I’d….?

give it to my mom and let her spend!

12. Do you sleep with a stuffed animal?

They are cute, but I don’t have any stuffed animal ;d

13. Storms – cool or scary?

Ummm scary!

14. Favorite drink?

Chai!!

15. Finish this statement, “If I had the time I would….”?

Sleep sleep and sleep!

16. Do you eat the stems on broccoli?

Uh?

17. If you could dye your hair any color, what would be your choice?

I will let them be black, I like natural ;p

18. Name all the different cities/towns you’ve lived in?

Chennai *India*, Saudia, Lahore, Pindi, Islamabad (visited these places)

19. Favorite sports to watch?

Cricket that also sometimes…! :/

20. One nice thing about the person who sent this to you?

She is funniest ;d

21. What’s under your bed?

Kachra!, wanna clean?

22. Would you like to be born as yourself again?

I would like to remain in skies… away from this world!

23. Morning person, or night owl?

Night owl!

24. Favorite place to relax?

My bedroom! and my bed :p and my blanket and sleeeeeeep ZzzZzz lol