A few days ago I was jarred out of my ignorance by an article I read in “The News” on thalassaemia major and the amount of blood required for its patients in Karachi. After raising this issue on Bloggers AP, I came in touch with Salman & Ayesha who run a very detailed website on Tmajor and its effects plus are actively involved in spreading awareness for this disease as well as organizing donations for its patients. So I immediatley went into interview mode and following are their very frank answers to my queries. Hopefully this will go a little step forward in us educating our selves on this disease and then going out to actually donate blood.
1) Why did you and salman start this effort? Tell us your story and the struggle behind it.
Our elder brother Nauman died at the age of 16, I was 12 at that time and I knew that doctors told our parents that kids with thalassemia don’t live for very long. So that incident was like confirming what the doctors said and it was very disheartning for us. Then I tried doing some personal research using some books I got from Fatimid then using internet and I realized that it’s not completely true — at that time I thought I should share the information I have found with others. And that very thought became the reason to launch a website dedicated to thalassemia.