FAiTh Patients & Parents representative Ayesha Mehmood discussing problems faced by #Thalassemia patients regarding hepatitis in event organized by Safe Blood Transfusion Programme, Pakistan on World Hepatitis Day in Karachi.
Thank you so much خواجہ عبدامعز for the video.
Why we ask or talk about screening? Because still there are blood banks and thalassemia centers who are using substandard kits, there are patients we know who take blood from different blood banks due to rare blood group and unavailability of blood in their center, we believe it is our right to know about each and every thing regarding our disorder & treatment. So that we are aware of places / people involved in malpractices.
One thing we forgot to mention that centers are reluctant to register if a patient is diagnosed with hepatitis, our question is where such patients should go then? They must have got hepatitis from a blood bank or thalassemia center right? So why disown them?
our website : http://www.thalassemia.com.pk
our page : https://www.facebook.com/FightAgainstThalassemia
our group : https://www.facebook.com/groups/Fight.Against.Thalassemia/