All posts by Ayesha

2 baata’in..

2 baatain sun ker, parh kar, jan kar afsoos ke ilawa kuch nahi kar pa rahi..

1st) thalassemia centres ke lougon ka kehna hay ke agar ham na hote, centres na hote aap loug kahan jate?

2nd) government ki taraf se provided medicines ki selling..

Kia hamara yaqeen apne Rab pe itna kamzor hay? Agar aik centre na hota dosra hota, dosra na hota teesra hota.. Allah hume be-yaar-o-madadgar tu kabhi na chorta..

Centres chalane wale lougon ka business nahi hay, koi job nahi hay.. centre hi un ka source of income hay tu yeh baat shayad unhe sochni chahiye ke agar bache na hote tu aap ki source of income kia hoti?
Shayad aap us time yeh kahen ke Allah humein kaheen aur se rozi deta tu yeh jan len ke Allah hi un bachon ko kaheen aur se treatment bhi deta agar aap na dete..

Medicines jin bachon ko suit nahi karti centres un ko bhi letter likh ke de deta hay ke jao free medicine lao, humein do hum return mein tumhe dosri medicine de gen aur woh free medicine baich dete hain centre wale.. kia yeh jaiz hay? Aap is tarah kisi ghareeb ka haq nahi mar rahe? Aap woh medicine baich kaise sakte hain?

Aap loug aik zariya / waseela hain, Khudara zameeni Khuda na bane..

Some wishes..

I have lots of wishes and plans in my mind for #thalassemia cause & thalassemia kids of #Pakistan .. I have decided to write them one by one.

Doesn’t matter if I can’t fulfill them.. maybe someone reading them have resources to fulfill them.. maybe someone can fulfill them..

Starting from number one.. my top most wish / plan for #thalassemia kids of #Pakistan is to have a HUGE REGULAR strong blood donor system.

2nd wish / plan is also important, that is provide proper iron chelation to every thalassemic.. No to fake useless drugs, no to negligence!

3rd provide some education/skill to every thalassemic so they can understand their disease better & earn some bucks to improve their life..

4th some restaurants take it as a CSR and provide lunch / dinner to #thalassemia kids of every thalassemia centre in Pakistan

14 years..

Though our family struggle for thalassemia is more than 30 years old.. but Salman the founder of Fight Against Thalassemia started the online awareness 14 years ago.. though he is no longer among us but we aim to keep his cause alive till our last breath inshaAllah..

We couldn’t have come along till here without our family, friends, colleagues & donors support.. we are nothing without you all..

Thanks a lot for the tremendous support, love and trust! may Allah always be with us all and accept our struggle for thalassemia free Pakistan & healthy thalassemics — ameen!

Haripur Thalassemia Care & Prevention Center

I am really slow in updating my journey on blog.. we visited Haripur Thalassemia Care & Prevention Center last month and here I am with all the updates gathered from there after a month :p

We were basically invited for a seminar to encourage patients of Haripur who are really in bad condition, to spread awareness and to awaken people of Haripur to come forward and help the patients there.. to make them realize that people from other cities like us are coming just for the sake of future generation so the people of Haripur, industrialist, politicians etc should do their part too.

As soon as I confirm my participation I started to gather funds so that we could take some infusion pumps and desferal injections with us for the patients of Haripur Thalassemia Center, since there are 175 patients registered but none of them is on proper iron chelation.

Soon we gathered funds for 5 infusion pumps and more than 200 injections Alhamdulillah.

Journey begins towards Haripur. Participated in the seminar, met patients, parents, many people from Haripur.. tried to play very small part.. distributed infusion pumps and injections in the most deserving patients.

Haripur Thalassemia Center is being run by Shahid Afridi [not the cricketer], in a rented place which has been changed quiet a few times due to one or other reason in last 6 years. Currently it has total 2 rooms & a laboratory. They are trying to run in the limited capacity, it is the only thalassemia center of Haripur with 175 patients registered.

Center is badly suffering from lack of place, staff, desferal injections, blood, funds etc.. we have tried to do as much as we could but we really wish if someone can sponsor the place completely and help them generously.

Here are the picture & videos of some events from Haripur visit..
My small talk
Story of a thalassemic from Haripur.. listen and realize the condition..

Distributing infusion pumps & injections
FAiTh member donating blood to encourage others
Our member Hammad donated blood for the first time
Condition of Haripur Thalassemia Center
Live from Haripur Thalassemia Center
Interview with admin Haripur Thalassemia Center
Donated a heater to the center

Complete album https://facebook.com/FightAgainstThalassemia/posts/372701916437445

100 cannula donated by a donor to Haripur Thalassemia Center, we all should donate these basic necessities to the centers


Sorry for too many videos & photos 🙂 just LOVE to share all the updates with you all!

If anyone wishes to sponsor a thalassemia kid OR want to donate anything to the Haripur Thalassemia Center feel free to contact us, we will share their details 🙂

Birthday Celebration..

Our family don’t celebrate birthdays, we usually go out have dinner on birthdays.. and that was the only plan for my 29th birthday [8th December] too.. but thanks to family & friends, had to cut 3 cakes in whole day, had dinner with friends & family.. AND highlight of the day.. celebrated birthday with fellows at Fatimid Foundation 🙂

Nothing can be greater than sharing happiness with others, we all should celebrate our birthdays, any good news with less fortunate.. and even if there is no reason, no birthday we shouldn’t forget them 🙂