Category Archives: Me, Myself & I

Everything that is about me, myself and I will be found here :)

Power of social media & Free HLA Typing Test

This is the power of social media & patient support!!

This father contacted me yesterday and told me that they need to get HLA typing test done, they are in Islamabad and the test will cost 1 lac in Shifa hospital. Is there anything I can do? Or can I refer to any hospital where it is less costly.

I knew Faiza Ijaz is involved in Bone Marrow Transplant center in Islamabad and she would be the perfect person to guide. With Faiza permission I sent her number to him.

And this is what I received in my inbox 

HLA typing class I and II high resolution cost around 1 lac in private hospital. You can get done in free or subsidized cost in Dr Akbar Niazi Teaching Hospital, this is such a big relief and very rarely people know about it.

Thank you so much Faiza!!

Salman Mehmood aka skdev on Kaun Hoga Naujawanon Ka Wazeer e Azam

24 year old boy from Karachi Pakistan, Salman, was a thalassemia major patient just like any other patient who suffer from same disease.

The only thing which separate him is his cause. His objective was to create awareness of thalassemia in general public. He designed and programmed website which give complete information on thalassemia (www.thalassemia.com.pk), apart from this he also organized blood camps.

He had an aim to work on thalassemia awareness, to support fellow thalassemics, he had a dream of Thalassemia Free Pakistan.

He was dearest among his friends and relatives. On 19th October 2009 he passed away due to Meningitis. Although he is no longer among us, but his cause is now lead by his sister Ayesha Mehmoood (who is also thalassemia major) and his cause will keep him alive.

our website : http://www.thalassemia.com.pk
our page : https://www.facebook.com/FightAgainstThalassemia
our group : https://www.facebook.com/groups/Fight.Against.Thalassemia/


Salman :’) the one and only who pushed me to work for thalassemia cause.., his memories, efforts made me work for the cause day & night.. I can never claim that this cause has another founder.. I don’t even like to mention co-founder (need to in papers) because he was the only one who started this cause and this cause belongs to him and our #thalassemia fellows from all over Pakistan..

We all need to work for his dream of Thalassemia Free Pakistan.

Ayen mil ker banayen Thalassemia se mehfooz Pakistan..

Discussion about thalassemia

Ayesha Mehmood, Co-founder Fight Against Thalassemia is 30 years old thalassemia major, working for thalassemia cause since more than 10 years and is a business woman..

In this video she is discussing:
– thalassemia awareness
– importance of blood donation
– desferal program
– sponsor a child
– Ramadan drive 2018
– daily iftari

our website : http://www.thalassemia.com.pk
our page : https://www.facebook.com/FightAgainstThalassemia
our group : https://www.facebook.com/groups/Fight.Against.Thalassemia/

Some updates..

Alhamdulillah 3 new fellows from Fatimid Foundation Karachi got sponsored for transfusions & iron chelation

3 kids sponsored thalassemia Karachi transfusion chelation iron

Alhamdulillah each month all our sponsored fellows are getting their required medicines on time, Alhamdulillah! [few glimpses]

Was invited as a panelists for Transfusion Issues in Thalassaemia Management in Pakistan / Experience Sharing From TIF 2017 Conference by Safe Blood Transfusion Programme, Pakistan in December, 2017 _ Islamabad

thalassemia seminar

There’s so much needed to be done, have lots of plan for the betterment of thalassemia fellows of Pakistan.. I hope together we can bring more betterment, ameen..!

کچھ تھیلیسیمیا کی نقطہ نظر سے

کچھ تھیلیسیمیا کی نقطہ نظر سے اضافہ

ڈاکٹر بنو قصاب نہیں۔۔ ہم پر تجربہ مت کرو۔۔ ہمیں مکمل معلومات دو تاکہ ہم اپنا خیال رکھیں اور زیادہ، ہمیں صرف خون نا چڑھائو ہمیں فولاد کم کرنے کا طریقہ بھی بتائو، ہم پر ایرانی ڈسفرال ۔۔ بون مورو یا ہائیڈرا کا تجربہ نا کرو۔۔

ہمیں انسان سمجھو، تجربہ کے لئے چوہا نہیں۔۔ تھیلیسیمیا سنٹر میں ہمارے لئے عام ڈاکٹر نہیں ہیموٹولیجیسٹ لائو۔۔ ڈاکٹر بنو قصاب نہیں۔۔