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Few days ago on Benazir Bhutto’s birthday according to the frontier post PPP leaders, workers donated 28,300 blood bags. From that bags 4500 bags were given to different thalassemia centers in Karachi and a MEGA TRANSFUSION EVENT was organized at Expo Center Karachi on 26th June.
Being a thalassemia major and an activist I didn’t like the idea of it and I had some reservations, despite of it being open event I choose not to attend. We patients know what is right, what is wrong, I know getting transfusion on a place where you can’t provide immediate treatment if God forbid anything wrong happens is the MOST idiotic mistake I will make ever in my life. Continue reading General Secretary PDF PPP – Shakir Alam
Visited Fatimid Foundation after so long on 30th January… Depressed to see all the condition there… how can people be so arrogant with patients..?
So much of blood shortage… Patients with 2-3 gram hemoglobin have to wait a week for their blood transfusion… Highly disappointed…
My mom & dad has been organizing blood camp for thalassemia children when me, Salman and Noman bhai were so young, they knew the pain of a thalassemia child, they knew how it feels when a child have to be dependent on other’s blood for their live.
After mom & dad and after losing Noman bhai we decided to organize blood camps on our own, we started to take care of camps etc but we were really taken back when people didn’t take interest, we literally had to beg people for blood donations.
After Salman I used to take 5-10 friends of mine to thalassemia centers and they used to donate every 4th month happily, they still do. I stopped organizing blood camps because of people behavior; I couldn’t beg them for blood donation…
But today here I am again, to beg for those thalassemia patients who can’t afford treatment at Aga Khan, who can’t arrange donor every time they need transfusion and who can’t pay screening cost…
If you are a student and you can organize a blood camp in your college or university, let me know.
If you are in a political party and you can organize a blood camp in your area, let me know.
If you are running a factory/company and you can organize a blood camp there please let me know.
You don’t have to pay for anything, all you have to give space to a thalassemia center & donors, if you can convince your fellows, friends, relatives, employees, workers please do so…
Your blood help save thalassemia child’s life! They look at others with a hope to continue their lives. A single bag of blood help saves 3 lives!
And it is in the Quran “And whoever saves one – it is as if he had saved mankind entirely.”
Since it was winter vacation we decided to explore Sindh 🙂
Journey started from Karachi, we reached Hyderabad at 9PM, checked-in Hotel Venus at Thandi Sarak, went out for dinner at Shalimar Broast, got back in hotel and slept. Warm and cozy hotel it is.. Shalimar Broast is good for pait-pooja, tried Chicken Shashlik, Chicken Karhai & Zinger Burger.
Day 2 started with breakfast at a dhabba with chai, paratha & omelet. Headed to Qadamgha Moula Ali (A.S) then to Sindh Museum but sadly it was 27th December and the city was closed… had no choice but to leave for some other place. We decided to go for Thatta.
Reached Thatta at 2:30PM, headed out for Shah Jahan Masjid, Mazar Shareef Hazrat Syedna Abdullah Shah Jeelani Ashabi (R.A) and then to Makli Hills. Decided to travel back to Hyderabad without wasting any time… stopped at Jamshoro for refreshment. And we started our journey for Dadu.
For a night stayed at Bhittai Hotel situated on By Pass Larkana Road Dadu. It was inaugurated just 4 days ago. AMAZING service, awesome rooms, reasonable rent. Highly recommended.
Left for Larkana, reached Ghari Khuda Bakhsh. Can’t deny the fact of it being beautiful!, parked the car, went inside and was informed that we can’t visit the mazar for 30 minutes since there’s some VVIP coming for Fatiha..
For next 30 minutes we wandered around, found a bazaar, talked to few shopkeepers. Was informed that among Benazir’s children only Aseefa visit mazaar mostly, Bakhtawar & Bilalwal visit once in an year. Through none of our concern who visits and who doesn’t but as shopkeeper was sharing it we listened to him. They have a municipal corporation working there BUT the amount of trash we saw there was unbearable.
We were informed after 30 minutes that we can visit the mazaar now since VVIP has left. Crossing the security we entered in mazaar.
It was indeed depressing to see the 95% crowd there was just for pictures, wandering around, giggles, laughter, etc. It was disgusting to see people standing in front of tombs and making selfies.
Later on we traveled back to Larkana, stayed for a night and then headed towards Moen Jo Daro in the morning. Had GREAT time learning about the history of Moen Jo Daro, saw the collectibles of Moen Jo Daro at the museum and spent some time in Moen Jo Daro Guest House.
Started traveling for Sehwan Shareef, visited Gar e Qalandar (R.A), it was really peaceful atmosphere at the Gar. Visited Takht e Qalandar, Indus River and then we went to the mazaar.
Was supposed to stay at mazaar for Fateha for some time but we found out that Shia community is there for some matam… in 26 years of my life I saw this for the first time and sorry, no offence but I was feeling so uncomfortable that we all decided to leave the mazaar as soon as possible.
And we started our journey back to Karachi.
Few things I would like to mention, the CHILLY & FOGGY nights & mornings of interior Sindh IS TO DIE FOR!, the roads are awesomely built, greenery you see while travelling is BEAUTIFUL!, the history behind our Buzurg Gawara E Deen, Moen Jo Daro and historical places is remarkable.
I believe I have just managed to cover 25% of Interior Sindh, there’s so much to see, visit and discover in Sindh. We really underestimate the beauty of Sindh.
It was really a memorable trip of my life Alhamdulillah. Couldn’t agree more to the phrase “Jagah jii lagane ki duniya nahi hay / Yeh ibraat ki jaa hay.. tamasha nahi hay” after visiting Bhutto’s & Hazrat Lal ShahBaz Qalanda R.A mazaar.
Note: We have tried to capture pictures of all the places, please check album for names & images of the places.
May 8th is observed as World Thalassemia Day.
What is thalassemia?
Thalassemia is an inherited characteristic of the blood. It reduces the amount of hemoglobin in a human body, leading to anemia. Deficiency or a lesser count of red blood cells, or too little hemoglobin in blood, is Anemia – which simply means a shortage of blood.
There are two main types of thalassemia, thalassemia minor [carrier state], thalassemia major [disease state].
When two thalassemia minors marry each other there are 50% chances in each delivery of having a child with thalassemia major.
Every year 5000 to 6000 children are born with thalassemia in Pakistan and thalassemia major’s only cure is blood transfusion; they remain transfusion dependant through-out their lives.
It is said an ounce of prevention is better than cure; just a simple blood test can save your next generation from thalassemia major. There are many countries which are now thalassemia free because they implemented blood test rule before marriage. If a couple can go for blood test before marrying they can not only help the country in reducing thalassemia births every year BUT they also can save their own offspring.
What you can do as an individual?
* You can get yourself and your partner tested before marriage
Ask your friends to do the same
* If someone you know who is getting married ask them if they have gone for the test?
* Spread this information around your family, friends, colleagues, neighbors and everywhere… TO SAVE THE NEXT GENERATION!
AND MOST IMPORTANT:
Donate blood; make it a habit to donate blood in every 4 months. Thalassemia majors are alive because of those generous blood donors who help them live. It is in Quran “saving one life is like saving the whole humanity”.
Together we all can make Pakistan thalassemia free!
If you want to know more about thalassemia visit: www.thalassemia.com.pk
Our cause on Facebook : www.facebook.com/groups/Fight.Against.Thalassemia