24 year old boy from Karachi Pakistan, Salman, was a thalassemia major patient just like any other patient who suffer from same disease.
The only thing which separate him is his cause. His objective was to create awareness of thalassemia in general public. He designed and programmed website which give complete information on thalassemia (www.thalassemia.com.pk), apart from this he also organized blood camps.
He had an aim to work on thalassemia awareness, to support fellow thalassemics, he had a dream of Thalassemia Free Pakistan.
He was dearest among his friends and relatives. On 19th October 2009 he passed away due to Meningitis. Although he is no longer among us, but his cause is now lead by his sister Ayesha Mehmoood (who is also thalassemia major) and his cause will keep him alive.
Salman :’) the one and only who pushed me to work for thalassemia cause.., his memories, efforts made me work for the cause day & night.. I can never claim that this cause has another founder.. I don’t even like to mention co-founder (need to in papers) because he was the only one who started this cause and this cause belongs to him and our #thalassemia fellows from all over Pakistan..
We all need to work for his dream of Thalassemia Free Pakistan.
Ayen mil ker banayen Thalassemia se mehfooz Pakistan..
Fight Against Thalassemia Patients & Parents Society
We are starting this society with two basic aims; one of them would be to struggle for better treatment and second would be thalassemia awareness.
All over Pakistan we don’t have a proper patient & parent society to voice our concerns & needs. It is need of the hour to have one society for our patients and parents.
With the help of this society we will able to document the problems we face, the needs we have, and the betterment of treatment we deserve.
With the help of this society we will be in better position to put forward our demands, needs and concerns. We will be in better position to reach out to higher official authorities & get solutions of our problems.
Only patients & parents will be the members of this society since only they know the true suffering and they are the beneficiary of thalassemia society.
“Each one of us can make a difference. Together we make change.” – Barbara Mikulski
If you wish to be a part of Thalassemia Patient & Parent Society, please fill the form below.
Pichle 3 saal ki tarah inshaAllah is saal bhi hum apne #thalassemia fellows ko Ramadan rashan pack dene ka irada rakhte hain, Shabaan shuroo hochuka hay aur hum sab bhi apne apne ghar mein Ramadan ki tayyari’on mein lag chuke hain, kia hum kisi aik family ke liye aik rashan pack nahi de sakte?
Mujhe maloom hay yeh kuch mushkil nahi, inshaAllah har saal ki tarah hamare dost colleagues sab saath den gen hamara, bus request yeh hay ke koshish karen contribution jaldi bhej den ta ke hum bhi jald hi provide kar saken aaghay..
Zakat nikalte time hamare thalassemia cause ko bhi yaad rakhiye ga, 99% thalassemia patients zakat ke mustahiq hain..
Koi contribute karna chahta hay tu contact karlen, koi sawal karna chahta hay woh hume inbox karden..
Aik month rashan cost 5000/- and 15 days rashan cost 2500/-
Pichle 3 saal hum ne #thalassemia center mein kabhi 10 roza, kabhi 15 roza iftari provide ki thi Alhamdulillah..
Is saal hamara irada 30 roza iftari ka hay, agar aap mein se koi dost is kar e khair mein hissa lena chahta hay tu rabta karen..
Aik box ki cost 120 rupees, aap chahe tu aik box ki cost bhi de sakte hain..
1st) GET YOURSELF TESTED! – yes, uthen apni seat se aur kisi achi lab se apna thalassemia ka test kerwayen, apni aane wali nasal ko thalassemia se mehfooz banayen.
2nd) DONATE BLOOD – aap ki di howi aik khoon ki bottle 3 zindagi’an bacha sakti hain, comment karen agar aap nahi jante ke kahan donate kerna chahiye ya thalassemia center kahan hay aap ke shehar mein.. I will guide.
3rd) SPONSOR A CHILD – agar Allah ta’ala ne aap ko wasaa’il diye hain tu kisi aik thalassemia bache ki medicines, transfusion ya education ka kharcha utha len.
4th) WORK ON AWARENESS – apni shop, office, warehouse, college, university mein awareness session kerwayen, blood camps lagwayen..
Aayen mil ker banayen Thalassemia se mehfooz #Pakistan