Tag Archives: desferal

An Interactive Session For Thalassemia Patients & Parents

An Interactive Session For Thalassemia Patients & Parents was organized by FAiTh Patients & Parents Association in collaboration with Memon Professional Forum on 22nd July 2018 in Karachi.

Event was conducted by Dr Muhammad Usman Sheikh consultant hematologist Aga Khan University Hospital. The event was attended by thalassemia patients & their parents from different thalassemia centers.

The event gave a great chance to our thalassemia fellows to ask questions regarding their treatment openly to doctor.

We are really thankful to Dr Muhammad Usman Sheikh for his time, support and knowledge.

Picture courtesy: our great thalassemia fellow Raza Ahmed

Pictures : Click here 

Video : Click here

An Interactive Session For Thalassemia Patients & Parents

We are pleased to inform you that “An Interactive Session For Thalassemia Patients & Parents” is scheduled to be held on Sunday, July 22, 2018 from 10:30 AM to 1:00 PM at MPF Secretariat, Exclusive Trade Centre, 26-C, 4th Floor, Rahat Commercial Lane-3, Opp. SKBZ College, DHA Phase VI, Karachi.

The session will be conducted by:
Dr. Usman Sheikh, Haematologist of Aga Khan University Hospital, Karachi.

Please also find the attached flyer for further details of the program.

There is no registration fee.

For FREE registration, kindly contact at
MPF Secretariat
Phone Number 021-35846450 or send an email at
mpforum@yahoo.com with name(s)and contact numbers of person(s) who wish to attend. Seats are limited to first 60 participants.

Thanks & best regards

#thalassemia #thalassaemia #pakistan

Ramadan 2018 Summary

Alhamdulillah here’s a summary of our Ramadan activities..

With your amazing support and help we were able to provide 64 rashan packs, 54 Eid dresses, 50+ toys, 15+ days iftari, 50 tourniquets, 1200 butterfly needles Alhamdulillah Alhamdulillah Alhamdulillah!

May Allah accept our efforts and may Allah always be with us all, ameen.

JazakAllah khair for wonderful support. Keep supporting us and remember us all in your prayers.

Ramadan Drive 2018

Here’s a small video for our donors to see the preparation behind distribution of rashan, eid dress and toys among thalassemia fellows of Rashidabad

Purchasing of eid dresses, toys and packing of rashan.

Distribution of rashan packs, eid dresses & toys at Fatimid Foundation, Rashidabad.

Alhamdulillah distributed 45 rashan packs, eid dresses and toys among thalassemia fellows of Rashidabad

Thanks to our wonderful donors for making it possible, jazakaAllah khair.

 

Expired Medicines..

میرا آپ سب لوگوں سے ایک سوال ہے کیا آپ اپنے لئے یا اپنے بچوں کے لئے معیاد ختم (expire) ادوایات استعمال کریں گے؟ ہماری ایک فیلو نے ہم سے شیئر کیا کہ وہ وہ انجکشن استعمال کر رہیں ہیں جن کی معیاد ۲۰۱۵ میں ختم ہوچکی ہے کیونکہ وہ خرید نہیں سکتیں۔۔ اور اپنے سفید پوشی کا بھرم رکھتے ہوئے کسی سے کہہ بھی نہیں سکتیں۔۔

ہم سب کو معلوم ہے علاج جاری رکھنا بھی ضروری ہے اور وسائل بھی نہیں، یہ ہے تھیلیسیمیا کے مریض کی زندگی۔۔

اگر کوئی مدد کرنا چاہتا ہے تو ہم سے رابطہ کرلیں۔۔ جزاک اللہ

 
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Thalassemia major ko iron kam karne ke liye infusion pump lagana parta hay, jis ke liye unhe 4 cheezon ki zaroorat hoti hay.

1) injection desferal (un ke weight aur prescription ke mutabiq, aik injection ki cost 280 tak hoti hay aur dose 2-4 injection daily)

2) infusion pump : 5000 – 6000 cost

3) butterfly needle aik daily, 10 – 15 rupees cost

4) 10 cc syringe aik daily, 20 – 25 rupees cost

Har thalassemia major itna kharcha afford nahi karsakta, aap chahe tu un ki is mein madad kar sakte hain..