Tag Archives: iron

An Interactive Session For Thalassemia Patients & Parents

We are pleased to inform you that “An Interactive Session For Thalassemia Patients & Parents” is scheduled to be held on Sunday, July 22, 2018 from 10:30 AM to 1:00 PM at MPF Secretariat, Exclusive Trade Centre, 26-C, 4th Floor, Rahat Commercial Lane-3, Opp. SKBZ College, DHA Phase VI, Karachi.

The session will be conducted by:
Dr. Usman Sheikh, Haematologist of Aga Khan University Hospital, Karachi.

Please also find the attached flyer for further details of the program.

There is no registration fee.

For FREE registration, kindly contact at
MPF Secretariat
Phone Number 021-35846450 or send an email at
mpforum@yahoo.com with name(s)and contact numbers of person(s) who wish to attend. Seats are limited to first 60 participants.

Thanks & best regards

#thalassemia #thalassaemia #pakistan

Ramadan Drive 2018

Here’s a small video for our donors to see the preparation behind distribution of rashan, eid dress and toys among thalassemia fellows of Rashidabad

Purchasing of eid dresses, toys and packing of rashan.

Distribution of rashan packs, eid dresses & toys at Fatimid Foundation, Rashidabad.

Alhamdulillah distributed 45 rashan packs, eid dresses and toys among thalassemia fellows of Rashidabad

Thanks to our wonderful donors for making it possible, jazakaAllah khair.


Expired Medicines..

میرا آپ سب لوگوں سے ایک سوال ہے کیا آپ اپنے لئے یا اپنے بچوں کے لئے معیاد ختم (expire) ادوایات استعمال کریں گے؟ ہماری ایک فیلو نے ہم سے شیئر کیا کہ وہ وہ انجکشن استعمال کر رہیں ہیں جن کی معیاد ۲۰۱۵ میں ختم ہوچکی ہے کیونکہ وہ خرید نہیں سکتیں۔۔ اور اپنے سفید پوشی کا بھرم رکھتے ہوئے کسی سے کہہ بھی نہیں سکتیں۔۔

ہم سب کو معلوم ہے علاج جاری رکھنا بھی ضروری ہے اور وسائل بھی نہیں، یہ ہے تھیلیسیمیا کے مریض کی زندگی۔۔

اگر کوئی مدد کرنا چاہتا ہے تو ہم سے رابطہ کرلیں۔۔ جزاک اللہ

Thalassemia major ko iron kam karne ke liye infusion pump lagana parta hay, jis ke liye unhe 4 cheezon ki zaroorat hoti hay.

1) injection desferal (un ke weight aur prescription ke mutabiq, aik injection ki cost 280 tak hoti hay aur dose 2-4 injection daily)

2) infusion pump : 5000 – 6000 cost

3) butterfly needle aik daily, 10 – 15 rupees cost

4) 10 cc syringe aik daily, 20 – 25 rupees cost

Har thalassemia major itna kharcha afford nahi karsakta, aap chahe tu un ki is mein madad kar sakte hain..

Thalassemia Patients & Parents Society

Fight Against Thalassemia Patients & Parents Society

We are starting this society with two basic aims; one of them would be to struggle for better treatment and second would be thalassemia awareness.

All over Pakistan we don’t have a proper patient & parent society to voice our concerns & needs. It is need of the hour to have one society for our patients and parents.

With the help of this society we will able to document the problems we face, the needs we have, and the betterment of treatment we deserve.

With the help of this society we will be in better position to put forward our demands, needs and concerns. We will be in better position to reach out to higher official authorities & get solutions of our problems.

Only patients & parents will be the members of this society since only they know the true suffering and they are the beneficiary of thalassemia society.

“Each one of us can make a difference. Together we make change.” – Barbara Mikulski

If you wish to be a part of Thalassemia Patient & Parent Society, please fill the form below.


4 things you can do for Thalassemia

A very quick and small post regarding #thalassemia day

1st) GET YOURSELF TESTED! – yes, uthen apni seat se aur kisi achi lab se apna thalassemia ka test kerwayen, apni aane wali nasal ko thalassemia se mehfooz banayen.

2nd) DONATE BLOOD – aap ki di howi aik khoon ki bottle 3 zindagi’an bacha sakti hain, comment karen agar aap nahi jante ke kahan donate kerna chahiye ya thalassemia center kahan hay aap ke shehar mein.. I will guide.

3rd) SPONSOR A CHILD – agar Allah ta’ala ne aap ko wasaa’il diye hain tu kisi aik thalassemia bache ki medicines, transfusion ya education ka kharcha utha len.

4th) WORK ON AWARENESS – apni shop, office, warehouse, college, university mein awareness session kerwayen, blood camps lagwayen..

Aayen mil ker banayen Thalassemia se mehfooz #Pakistan