Tag Archives: karachi

Khairpur Session 2018

FAiTh – Fight Against Thalassemia – A Patients & Parents Association conducted it’s 2nd Patients & Parents Session at Khairpur Fatimid Foundation on Saturday 10th November 2018

The session was attended by patients, parents & staff of Fatimid Foundation Khairpur. According to the administrator there are 300 active patients who visit Fatimid Foundation Khairpur regulary for their treatment.

We briefed them about how can they take better care of themselves, how they can maintain their hemoglobin and ferritin, about prevention, about FAiTh Patient Support Group, how can they spread awareness & how can they help themselves & thalassemia center regarding blood donations.

Khairpur is a city and the capital of the Khairpur District, in Pakistan’s Sindh province, we traveled 437.5 km from Karachi to reach Khairpur. Majority of the people in Khairpur doesn’t understand Urdu / English, their native language is Sindhi.

Our Khairpur / Sukkur Team Leader Areeba Gulzar translated all the talks in Sindhi to make it easy for people to understand.

In the end attendees promised us to follow all the guidelines we shared with them.

Gifts & lunch was distributed among the patients by FAiTh

We are thankful to Fatimid Foundation for giving us chance to interact with patients & parents, for the arrangements & support.

our website : http://www.faith.org.pk
our website : http://www.thalassemia.com.pk
our page : https://www.facebook.com/FightAgainstThalassemia
our group : https://www.facebook.com/groups/Fight.Against.Thalassemia/
our youtube channel : https://www.youtube.com/channel/UCsOJBJnjmBPVkb8sZcNQQ8g

VIDEO

PICTURES : HERE

Thalassemia Patient Issues with Hepatitis in Pakistan

FAiTh Patients & Parents representative Ayesha Mehmood discussing problems faced by #Thalassemia patients regarding hepatitis in event organized by Safe Blood Transfusion Programme, Pakistan on World Hepatitis Day in Karachi.

Thank you so much خواجہ عبدامعز for the video.

Why we ask or talk about screening? Because still there are blood banks and thalassemia centers who are using substandard kits, there are patients we know who take blood from different blood banks due to rare blood group and unavailability of blood in their center, we believe it is our right to know about each and every thing regarding our disorder & treatment. So that we are aware of places / people involved in malpractices.

One thing we forgot to mention that centers are reluctant to register if a patient is diagnosed with hepatitis, our question is where such patients should go then? They must have got hepatitis from a blood bank or thalassemia center right? So why disown them?

our website : http://www.thalassemia.com.pk
our page : https://www.facebook.com/FightAgainstThalassemia
our group : https://www.facebook.com/groups/Fight.Against.Thalassemia/

An Interactive Session For Thalassemia Patients & Parents

We are pleased to inform you that “An Interactive Session For Thalassemia Patients & Parents” is scheduled to be held on Sunday, July 22, 2018 from 10:30 AM to 1:00 PM at MPF Secretariat, Exclusive Trade Centre, 26-C, 4th Floor, Rahat Commercial Lane-3, Opp. SKBZ College, DHA Phase VI, Karachi.

The session will be conducted by:
Dr. Usman Sheikh, Haematologist of Aga Khan University Hospital, Karachi.

Please also find the attached flyer for further details of the program.

There is no registration fee.

For FREE registration, kindly contact at
MPF Secretariat
Phone Number 021-35846450 or send an email at
mpforum@yahoo.com with name(s)and contact numbers of person(s) who wish to attend. Seats are limited to first 60 participants.

Thanks & best regards

#thalassemia #thalassaemia #pakistan

Ramadan 2018 Summary

Alhamdulillah here’s a summary of our Ramadan activities..

With your amazing support and help we were able to provide 64 rashan packs, 54 Eid dresses, 50+ toys, 15+ days iftari, 50 tourniquets, 1200 butterfly needles Alhamdulillah Alhamdulillah Alhamdulillah!

May Allah accept our efforts and may Allah always be with us all, ameen.

JazakAllah khair for wonderful support. Keep supporting us and remember us all in your prayers.